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!personal

So, I was diagnosed with congenital nystagmus at an early fucking age. This is complicated for people who've never heard of it before to comprehend, until they notice the eyes of the person in question. Think of it this way: I lack the biological form of optical image stabilization. Because of nystagmus, I can't fucking drive.

Now, let me tell you, it really fucking sucks. I've never had a girlfriend, never been able to get a job, basically never been able to do the type of shit most of you can already fucking do. Pile that on with college, where I don't really fucking know anybody, and it's really fucking easy to see why I've had depression and nearly fucked my GPA over last semester (2.08, yeah it's embarrassing but fuck it).

That out of the way, nystagmus is rare. So rare that any surgeries to fix it aren't guaranteed to fix the problem, and are only marginally better. I have strong skepticism for any optometrist who acts like they perform this surgery every day, because the numbers simply don't back them up. If there's so few who have this issue, then the amount of operations and opportunities to do them are fucking slim.

Today, my mom came over to Indiana from Ohio, and took me to the local Cheddar's (do other countries have those??). We sit down, and she wanted to re-hash this surgery idea. I have made the statement before that these are the only two eyes that I will ever have, and there's no guaranteed ROI on any procedures, and is probably going to fuck me over if shit hits the fan.

Then she tells me there's this doctor in Maryland. I might be geographically challenged (lol), but I'm pretty sure that's over on the east coast. It's forever from here, we'd probably have to take an airliner.

This doctor made some pretty bold fucking claims. Not only was it possible he could fix the nystagmus, but he could help me use a special form of glasses that would enable me to learn to drive. Knowing that R&D on nystagmus was sketchy because of the aforementioned conditions, I had to tell her that I still don't know how I feel about it. Also, if this doctor moves from Maryland to any of the other states, would he still be allowed to do these things?

I told her I don't know how I feel about it. I'm not sure it's worth the money if we follow through and come to find out it's not enough, and I still can't drive. She acts like this stuff is dead simple. I don't think it is. You have perceived benefits, but there have to be caveats. This would be a major change, and I don't know how I feel about following through with it.

Comments
  • 3
    That's a tight situation.

    I really think you should see that doctor. Tell me, what do you think is the worse that can happen?

    I also want you to compare the advantages and disadvantages of seeing this doctor. Which outweights which?
  • 3
    @Michelle That's the thing...done properly and the benefits are ginormous. Gone wrong, and I could be left permanently blind. I do want to at the very least schedule an examination...
  • 4
    @mgagemorgan
    If I were in your situation, and if there was even 1% of a chance for me to get better, I would take it. Even if it means being blind.

    I know it isn't easy, and blindess can be scary, but would you really want this thing to ruin your life?

    Majority of the cases resulted in success, correct? You'll be fine, I'm sure of it. And if you end up becoming blind, I'll give you my address, and you can kill me as revenge. (No joke. I'll even let you do it.)
  • 4
    Lmfao I'm not gonna kill you, @Michelle. Yeah, it's been nagging at me in the back of my mind. There seems to be more interest if there are people legally making claims that it can be fixed. The numbers of people affected are startlingly low, however.

    If/when a major event related to this happens, I'll probably end up posting another rant about it.
  • 1
    @mgagemorgan is blindness the worst possible outcome or are you just assuming it is? Maybe the wpo is they fix nothing 🤔
  • 2
    @mgagemorgan
    Well, good luck :)
  • 0
  • 2
    @rangler I dunno. Then the question is still whether or not the pain, time people are away from their jobs, and money spent was worth it...we're not the most financially stable family on the planet. Like, struggle to get groceries in the kitchen and then realize you need to spend time away from your job and money that insurance may not cover for a surgery that would be bomb af if it were to work but also had a chance of going "Flowers for Algernon" except Charlie saw no improvement after the operation and lived to see another day...like nothing had ever happened.
  • 3
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